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News: Noninvasive Therapy Used to Treat Pediatric Complex Regional Pain Syndrome

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Noninvasive Therapy Used to Treat Pediatric Complex Regional Pain Syndrome

Mar 02, 2015 | Rachel Lutz

Pediatric complex regional pain syndrome (CRPS) can be treated using a scrambler therapy (ST), Calmare, according to research presented at the American Academy of Physical Medicine and Rehabilitation Annual Assembly held November 13-16 in San Diego.

Researchers from Utah Valley Pain Relief introduced scrambler therapy called Calmare as a noninvasive neuromodulation approach to the treatment of chronic neuropathic pain. The ST is thought to interfere with the pain neuromatrix by providing nonpain codes. Though the therapy was originally developed to treat pain in cancer-related neuropathic pain and chemotherapy induced peripheral neuropathy patients, it had since been successfully used to treat a variety of chronic pain symptoms. However, it has not been widely tested for pediatric patients, which the researchers aimed to rectify in their current research.

“In our opinion, the multidisciplinary care model best fits the treatment model for this diverse patient group, allowing flexibility for individual patient needs while encouraging peer, family, and team support, with the goal of sustained ongoing progress and recovery,” the authors wrote after conducting a literature review, which determined children with chronic neuropathic pain respond better to noninvasive approaches to pain management.

By identifying the nervous system as a cybernetic system that responds to nerve pain as coded information, researchers were able to pinpoint when chronic pain receptors have been damaged. They noticed it created erroneous codes that were independent from the pain source. The researchers saw the pain signals reinterpreted by the brain; otherwise, the signals were continuing to be interpreted as pain signals back to the body. Calmare was used to intercept these pain signals and send non pain signals back to the brain. Calmare positively impacted the effort to decrease the various forms of neuropathic pain.

In a case study, researchers concluded the ST Calmare pain therapy was appropriate for treatment of pediatric complex regional pain syndrome.

“There are many people looking for insights and answers about Calmare,” Erick Bingham, DC, from Utah Valley Pain Relief said in a press release. “There are many children with CRPS who can benefit from these treatments. This case study reveals in a practical way what’s possible with the right information and guidance.”

– See more at: http://www.hcplive.com/news/Noninvasive-Therapy-Used-to-Treat-Pediatric-Complex-Regional-Pain-Syndrome-#sthash.Rt4Kq0UA.dpuf

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People: Garfield man who jumped from Fort Lee cliffs with dog wrote of chronic pain, mental issues (Cross Yoler)

Garfield man who jumped from Fort Lee cliffs with dog wrote of chronic pain, mental issues

Posted by: Jerry DeMarco
Posted date:  September 15, 2014
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A troubled Garfield man who held his Yorkshire Terrier in his arms as he jumped to their deaths from the Palisades in Fort Lee Historic Park this afternoon claimed that his parents threatened to obtain a restraining order against him after accusing him of taking a knife to his mother.

Cross Yoler, 34, also posted a portion of a psychiatric evaluation on his Facebook page that called him a danger to others and said he’d threatened to kill himself and the dog.

He also wrote of chronic leg pain from Complex Regional Pain Syndrome (CRPS), posting images from a thermographic exam.

“here we go,” Yoler wrote in a recent post. “Dad took off for a week, here starts the [expletive] abuse. if i die this week it will be because of the yoler family ……good bye world…..”

  • UPDATE: Before jumping from the Palisades in Fort Lee Historic Park with his beloved Yorkshire Terrier in his arms, a troubled 34-year-old Garfield man took to Facebook, posting anguished thoughts and accusing others of “murdering” him. READ MORE….

FB post

After setting his car on fire today, Yoler threw his backpack off the cliffs, then followed with the Yorkie around 3 p.m., Palisades Interstate Parkway Police Chief Michael Coppola told CLIFFVIEW PILOT.

PIP police responding to near-simultaneous reports of a car fire and apparent bicycle crash on Henry Hudson Drive between Englewood Cliffs and Edgewater and found Yoler’s body, Coppola said tonight.

Fort Lee firefighters extinguished the car fire.

Three weeks ago, Yoler wrote on his Facebook page that he’d been accused of taking a knife to his mother when, in fact, he was fighting off his father, who he said “was choking me.”

“Tell me if you were being choked to death are going to stand there and do nothing or will you go in self defense mode,” posted Yoler, whose brother is a police officer.

“Family around the world this is for you. added Yoler, a Little Ferry native who was graduated from Ridgefield Park High School and attended Berkeley College in Clifton, according to his profile.

“Parents did this first,” he wrote, adding that his parents claimed he was mentally ill. “I am only protecting myself…..And my psychologist, he can go f— himself.”

CONTRIBUTED PHOTO

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

***** click here for the original article online.

 

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People: Pets Factor winner Barney is a dog in a million

Pets Factor winner Barney is a dog in a million

By ANA HINE, 5 September 2014 9.37am.

There were cute faces and waggy tails galore — and now the Tele can announce the winner of Pets Factor 2014.

Samantha Glennie, 26, and her supportive dog Barney, have been chosen as our overall winning contestants.

Samantha, from Ardler, said: “It’s great news, he’s never won anything before. I’ve entered him into a few competitions, but nothing as big as this. It’s put me in a great mood and it’s really cheered up my day.”

After losing the use of her right arm last year when a surgical operation went wrong, the nurse found herself suffering from complex regional pain syndrome.

But looking after her Bichon Frise Barney, aged two, has prevented Samantha from getting too depressed.

She said: “I have a rare surgical complication, CRPS, which is to do with the nerves. It’s chronic pain, where even a gentle touch can be incredibly painful, and it’s constantly swollen.

“I’m on a lot of medication. Barney helps me cope by running around mad and making me laugh. He cheers me up when I feel down.”

Samantha will be splitting her prize, receiving a £150 cheque and £100 worth of pet vouchers.

This is so that she can use some of the money to pay for flea and worm treatment, both for Barney and for a new dog, Terry, her mother has just adopted from Romania.

Samantha said: “We went to Romania together in June and now mum’s adopted this little terrier with an apricot coloured coat. He’s due here in two weeks, so he’ll be getting treated when he arrives in the country.”

Along with his own worming, Barney will get a new bed and lots of pampering.

This is because, although she keeps him in good health, Samantha struggles to groom and wash him with only one arm. She said: “He needs to be professionally groomed, but it costs quite a lot of money. Getting his hair cut and washed too, because his hair goes a bit wild.

“I will now be able to get him groomed.”

When Samantha is out at work or having hospital treatment Barney is looked after by her grandmother, to ensure he isn’t left on his own.

“Somebody’s always with him,” said Samantha. “When I come home from work, and I only work part-time, I take him out for a walk and play with him. I also take him round to my mum’s, so he’s very well loved.

“I didn’t think he’d get as far as he has and I certainly didn’t think we would win, because there were so many entrants. He deserves it.”

PDSA veterinary surgeon Fiona McLeod was a member of our judging panel and explained why Samantha and Barney had been her top pick of our five finalists.

Fiona said: “Congratulations to Samantha and Barney on winning the Evening Telegraph’s Pet Factor competition.

“It’s great that Barney helped Samantha through her difficult year last year.

“Dogs like Barney bring happiness to people when times are tough and provide companionship.

“The PDSA is very grateful to the Evening Telegraph for choosing them to be their charity partner and we invite Tele readers to come along to our open day tomorrow to see what goes on behind the scenes at the PDSA Pet Hospital at Hawkhill, Dundee.”

The PDSA will receive a donation from Evening Telegraph readers as a result of the competition.

 

 

 

*** Click here for the original article online.

 

 

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News: RSD sufferer is tasered by Spokane County Sheriff

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‘DON’T SHOOT ME’ 

A new lawsuit alleges Spokane County sheriff’s deputies used excessive force and ignored a man’s medical condition

 
 
Matt Kinerson alleges deputies used excessive force during a 2013 welfare check — despite warnings about his medical issues. - JACOB JONES
 
  • Matt Kinerson alleges deputies used excessive force during a 2013 welfare check — despite warnings about his medical issues.

On his knees in the parking lot of his Spokane Valley church, Matt Kinerson believes he is about to die. He watches a laser sight trained on his chest as several Spokane County sheriff’s deputies scream at him, weapons drawn. He had tried to warn them he has a medical condition, but now he cannot hold his weakened right arm above his head any longer.

It starts to fall toward his waist.

“I can’t stop it,” he explains. “I’m scared for my life.”

With his good left arm, he desperately reaches down and pulls up his shirt to try to show he does not have any weapon. As he pulls his shirt up over his face, a deputy fires a Taser, crumpling Kinerson to the ground.

“I thought I had been shot,” he says later. “I have a neurological disease, so I feel things differently.”

Kinerson, 44, suffers from Reflex Sympathetic Dystrophy, a disorder of the nervous system that causes chronic pain, hypersensitivity and mobility issues. In particular, Kinerson struggles to use his right arm, which hangs stiff along his stomach and shakes involuntarily.

His eyes grow wide and his voice turns sharp as he recalls the encounter from May 23, 2013. He explains deputies Tasered him twice, before wrenching his immobilized arm behind his back and berating him. He recently filed a federal lawsuit against the county and Tim Jones, the Spokane Valley deputy who fired the Taser, alleging excessive force and negligence.

County officials deny any wrongdoing, saying deputies believed Kinerson to be potentially suicidal and armed with a gun. A legal response filed last week says the deputy “used reasonable force to control the situation.”

Kinerson used to be a ski instructor. He says he enjoyed camping or shooting pool with friends. But throughout the past several years, RSD syndrome has increasingly limited his ability to function normally. Some days he struggles to get his shoes on. He lives with his parents, so they can help with daily tasks.

“It is very painful,” he says of RSD. “It messes with your nerves, messes with everything. … You just have to try to manage it.”

The day of the incident Kinerson had an argument with his family and drove off to cool down. After he left, his sister called 911 to report he might be distraught. She reportedly mentioned he sometimes carries a gun, for which he has a concealed pistol license.

Kinerson says a dispatcher soon called his cellphone. He gave her his location and assured her he was fine. When he saw sheriff’s patrol vehicles pull into the parking lot, he explained his medical limitations to the dispatcher so she could relay the information to the deputies. Kinerson’s father, George, says he also told 911 dispatchers about his son’s condition prior to the incident.

“I already know it makes police uneasy,” Kinerson says of his shaky right arm. “I can understand their position, [but] they didn’t try to communicate with me. … They didn’t do anything but scream at me the entire time.”

Despite the warnings, Kinerson was Tasered and wrestled into custody by force. He says he never offered any resistance, but deputies later reported he had yelled, “Shoot me!” Kinerson contends he was begging, “Don’t shoot me.”

George Kinerson says he and his wife have raised eight children to respect the church and the law, including one who served as a military police officer. But they say they now believe authorities misrepresented the facts of their son’s encounter, undermining the family’s longstanding trust in law enforcement.

Matt Kinerson never faced any charge. He later passed a psychological evaluation at the hospital. Even if he had been suffering mental distress, he says deputies made no effort to “talk him down” or reason with him. They defaulted to aggression, he says, treating an innocent citizen like a dangerous criminal.

“They didn’t act like police officers,” he says. “They acted like soldiers. … They’re not looking to protect and serve the populace. They’re looking to protect and serve themselves.”

His attorney Richard Wall says Spokane has seen a number of lawsuits in recent years based on overzealous police actions. Too many law enforcement encounters result in unnecessary force against a citizen.

Training should be improved, Kinerson says, but more than that or money, he would like to see the deputies fired. He says the community has become too complacent, giving law enforcement a free pass while citizens pay the price.

“I’m scared of them now,” he says. “I really am. That’s a bad thing. I shouldn’t be scared of the people I’m supposed to call when I’m in need.” 

 

 

 

*** Click here for the original article online.

 

 

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News: Paralympics: Archery rule changes ‘against Games values’ (Danielle Brown)

 

 

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Paralympics: Archery rule changes ‘against Games values’

Athletes with ‘invisible’ disabilities will suffer as a result of Paralympic rule changes, says Britain’s London 2012 archery champion Danielle Brown.

The International Paralympic Committee ruled last year that Brown, who has complex regional pain syndrome in her feet, was ineligible for future Games.

“The Paralympic values of inclusion and equality are out of the window,” said the 26-year-old Brown.

She is not the only British archer affected by the new rules.

Earlier this month, London Paralympic team-mate Kenny Allen, 43, who has spina bifida, learned he was also banned.

Play media

Paralympian Brown wins able-bodied national title

Both the IPC and World Archery say they have “refined” their rules and are enforcing them more rigorously than in the past.

The IPC also says there is a category for those with “intellectual impairments”.

“It seems to be the invisible disabilities they are targeting,” said Brown, whose condition gives her chronic pain in her feet.

She uses a combination of crutches and a wheelchair to move around and competes while seated on a stool.

“These rules are going to limit the number of people that can compete at the Paralympics,” said Brown, who has given up hope of defending her title at Rio 2016 as she cannot appeal against the decision.

In 2010, she became the first English Paralympian to qualify for an able-bodied Commonwealth team, winning gold in Delhi.

However, her compound bow event is not part of the programme for this summer’s Games in Glasgow.

The two-time Paralympian is not interested in switching to the Olympic-approved recurve bow and admits her days in elite competition are over.

Danielle Brown on her disability

“I have chronic pain in both of my feet. I use crutches to get around and a wheelchair for longer distances. Some people have it and are better in a couple of months, but I’ve had it for 14 years now and there’s no sign of it getting any better.”

“I fought it as hard and as far as I could,” said Brown, whose case was supported by the British Athletes Commission.

“I’m devastated that I won’t be able to defend my title in Rio and never expected anything like this to happen.”

She has set up a company with her sister Helen, who is studying for a PhD in sports psychology, and plans to mentor young athletes and professionals.

“I spent seven years being the best in the world and was quite good at dealing with pressure,” said Brown.

“That’s something I’d like to help others with, as well as coping with exam pressure and stress management.”

Find out more about Danielle Brown’s story on Saturday Sportsday on BBC One at 12:45 BST (19 April).

* Click here for the original article online.

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People: Days full of pain for RSD patients

Days full of pain for RSD patients

January 2, 2013
By Evan Bevins – The Marietta Times (ebevins@mariettatimes.com) , The Marietta Times

Two years ago, Waverly, W.Va., resident Mindi Ford broke her arm.

It barely fazed her.

“I felt it snap, I heard it snap, and it didn’t hurt,” she said.

Article Photos

Waterford resident Missy Reed, left, and Waverly, W.Va., resident Mindi Ford discuss the effects of reflex sympatheic dystrophy syndrome, or RSD, a condition with which both have been diagnosed that causes excruciating pain, among other symptoms.

EVAN BEVINS
The Marietta Times

That’s because Ford has been dealing for a decade with pain that, according to the McGill pain index, is more than twice as excruciating as a broken bone, and even more severe than childbirth or having a finger amputated. Applying ice to her arms or taking a shower is agonizing, and a friendly pat on the shoulder once caused her to black out.

The condition is known as reflex sympathetic dystrophy syndrome (RSD) or complex regional pain syndrome. The cause is unknown, but it often results from a traumatic injury, sprain, fracture or surgery and causes pain in affected areas that is dramatically disproportionate to the injury itself.

Starting this year, November will be recognized in Ohio as Complex Regional Pain Syndrome Awareness Month, thanks to a bill recently approved by the General Assembly. It goes along with an effort by the Reflex Sympathetic Dystrophy Syndrome Association and folks like Ford to spread the word about the disease, generating awareness for research and for diagnosing people sooner, when the condition is more treatable.

Fact Box

On the Web

International Research Foundation for RSD/CRPS – http://www.rsdfoundation.org

Reflex Sympathetic Dystrophy Syndrome Association – http://www.rsds.org

RSD Awareness – http://www.rsdawareness.com

About RSD

Called reflex sympathetic dystrophy syndrome or complex regional pain syndrome.

The principal symptom is pain that is dramatically disproportionate to the injury, along with pathological changes in bone and skin, excessive sweating, tissue swelling and extreme sensitivity to touch.

Physicians don’t know what causes the condition, but it usually occurs after a traumatic injury, surgery, sprain, fracture or period of immobilization.

There is currently no cure, but there are treatments that are more effective the earlier it is diagnosed.

Source: Reflex Sympathetic Dystrophy Syndrome Association.

Jim Broatch, executive vice president and director of the association, said there’s no good data on how many people RSD affects, but it’s estimated there are at least 50,000 new cases a year. Research is suggesting the cause is not just neurological but could also be inflammatory and related to the immune system.

“The evidence is starting to accumulate; there’s no smoking gun yet,” Broatch said.

Waterford resident Missy Reed, 44, is a registered nurse, but she knew virtually nothing about RSD when she was diagnosed with it four years ago. She contracted it in her left foot after surgery to repair her Achilles tendon and, as RSD tends to do, it spread to the other foot after a similar procedure two years later.

“I’ve been through two childbirths and a tubal pregnancy. And of course the tubal pregnancy was worse,” Reed said. “I would much rather go through the tubal pregnancy again than the RSD pain.”

Although she uses a combination of five medications to mitigate the effects of RSD as best she can, efforts to keep the pain from becoming even more unbearable affect even the smallest aspects of her daily life.

“I sleep on my stomach with my feet hanging over the bed,” she said. “Nothing’s touching them, so I can sleep.”

Reed said she can’t wear flip-flops to Walmart, lest the cold air from an opened freezer door send a burst of agony through her feet. And while she once held numerous track records at Fort Frye High School, she no longer runs.

“Year after year, your list of can’ts gets longer,” she said.

Both women said adapting to the pain and focusing on the positives in their lives help them deal with the pain, which is constant and sometimes flares to even higher levels.

Reed still works, something Ford, 45, is no longer able to do.

She ended up changing careers more than 10 years ago when the symptoms started. She had run a catering company, and believes the repetitive motions in which she carried heavy weights led to her contracting the disease.

“My arm was turning purple. It would just drop limp for no reason. I wouldn’t be able to hold a piece of paper between my finger and my thumb,” Ford said.

Then there was the pain.

“It really felt like my arm was in a campfire and you couldn’t pull it out,” she said.

The initial diagnosis was two conditions – carpal tunnel and thoracic outlet syndrome. An electromyogram eventually led to a doctor diagnosing her with RSD.

It was a condition she’d never heard of, but all the research she did afterward painted a bleak picture. There was no known cure, but the disease was treatable – if it was caught early, which Ford’s was not. Eventually, she got what she refers to as “the death sentence,” when “the doctors are pretty much telling you, ‘I’m sorry. There’s nothing more we can do.'”

“When you get that death sentence you mourn. You literally are mourning the death of the life you knew,” Ford said.

Ford and Reed attended Putnam Elementary School together but lost touch with each other after the sixth grade. They reconnected through Facebook, just as Reed was starting to deal with her diagnosis and recognized the symptoms Ford was describing online.

The camaraderie between them and other people living with RSD is an important part of coping.

“You can’t imagine it until you experience it,” Ford said.

It’s sometimes hard for friends and family, even some medical personnel, to grasp what an RSD patient is going through. The website for the Reflex Sympathetic Dystrophy Syndrome Association advises people who know someone with RSD to believe the pain is real, even if it doesn’t seem evident or seems out of proportion to what the individual is experiencing.

Ford said she frequently discusses her condition online, not to complain, but to raise awareness about it.

“We want people to see it, recognize it as a possibility and have it as one of the first things checked, rather than one of the last things checked,” she said.

Jolene Craig also contributed to this article.

 

 

Click here for the original article online.

 

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