RARE DISORDER: ‘Help us relieve our condition’

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Peterboroughtoday.co.uk, originally uploaded by rsdscrpsnews.

RARE DISORDER: ‘Help us relieve our condition’

A SUFFERER of a chronic pain disorder is backing plans for a medical conference on her condition.

Kelly Green (24), from Turves, near Whittlesey, suffers from Complex Regional Pain Syndrome (CRPS), a severe illness which causes her immense suffering.

CRPS, formerly known as Reflex Sympathetic Dystrophy, normally follows an injury, and in Kelly’s case resulted from a fall down the stairs.

The condition causes intense pain out of proportion to the severity of the injury, which, over time, gets worse instead of better.

Now Kelly is supporting fellow sufferer Trudy Lapinskis, from Whittlesey, as she plans a national conference on the condition for medical professionals.

Kelly was diagnosed with CRPS in 2003 and is still struggling to come to terms with the condition.

She said: “I have been diagnosed with depression and I have been suicidal. My friend helps to care for me during the day now, because I get so low.”

She explained that, after banging her elbow, it bruised and swelled so badly that she went to casualty.

She said: “They couldn’t tell if I had cracked it because there was too much swelling.”

Kelly was sent home, but soon went to see her doctor about the constant pain.

Fortunately, she is registered with the same GP who had treated Trudy, and he immediately recognised the symptoms.

Kelly now takes up to 30 painkillers a day and has regular injections to stimulate the nerves in her arm.

Clare Osler (21) has taken on the role of carer for her best friend and moved into her March Road home.

She said: “I work in the evenings so I am around during the day for Kelly.

“We went to school together. Before she was diagnosed, she wanted to be a PE teacher and she played football for Leicester ladies’ team. Now, she can’t do anything like that.

Most of the time she doesn’t even go out. Her life has completely changed.”

Trudy, who has been supporting Kelly since her diagnosis, wants patients to get the treatment they need more quickly and thinks the medical profession needs to learn more about CRPS.

Trudy lost part of her left leg to the condition, after developing complications following an infection, and feels her foot could have been saved if her condition had been diagnosed sooner.

She said: “I definitely wouldn’t be in this situation now.

“I am trying to get Dr Robert Schwartzman, from America, to come to the conference because he is the best specialist on the condition in the world. I have met him a number of times and I think he could really help us.”
16 December 2005

Click Here For Original Article Online

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