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News: Noninvasive Therapy Used to Treat Pediatric Complex Regional Pain Syndrome

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Noninvasive Therapy Used to Treat Pediatric Complex Regional Pain Syndrome

Mar 02, 2015 | Rachel Lutz

Pediatric complex regional pain syndrome (CRPS) can be treated using a scrambler therapy (ST), Calmare, according to research presented at the American Academy of Physical Medicine and Rehabilitation Annual Assembly held November 13-16 in San Diego.

Researchers from Utah Valley Pain Relief introduced scrambler therapy called Calmare as a noninvasive neuromodulation approach to the treatment of chronic neuropathic pain. The ST is thought to interfere with the pain neuromatrix by providing nonpain codes. Though the therapy was originally developed to treat pain in cancer-related neuropathic pain and chemotherapy induced peripheral neuropathy patients, it had since been successfully used to treat a variety of chronic pain symptoms. However, it has not been widely tested for pediatric patients, which the researchers aimed to rectify in their current research.

“In our opinion, the multidisciplinary care model best fits the treatment model for this diverse patient group, allowing flexibility for individual patient needs while encouraging peer, family, and team support, with the goal of sustained ongoing progress and recovery,” the authors wrote after conducting a literature review, which determined children with chronic neuropathic pain respond better to noninvasive approaches to pain management.

By identifying the nervous system as a cybernetic system that responds to nerve pain as coded information, researchers were able to pinpoint when chronic pain receptors have been damaged. They noticed it created erroneous codes that were independent from the pain source. The researchers saw the pain signals reinterpreted by the brain; otherwise, the signals were continuing to be interpreted as pain signals back to the body. Calmare was used to intercept these pain signals and send non pain signals back to the brain. Calmare positively impacted the effort to decrease the various forms of neuropathic pain.

In a case study, researchers concluded the ST Calmare pain therapy was appropriate for treatment of pediatric complex regional pain syndrome.

“There are many people looking for insights and answers about Calmare,” Erick Bingham, DC, from Utah Valley Pain Relief said in a press release. “There are many children with CRPS who can benefit from these treatments. This case study reveals in a practical way what’s possible with the right information and guidance.”

– See more at:


People: Garfield man who jumped from Fort Lee cliffs with dog wrote of chronic pain, mental issues (Cross Yoler)

Garfield man who jumped from Fort Lee cliffs with dog wrote of chronic pain, mental issues

Posted by: Jerry DeMarco
Posted date:  September 15, 2014
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A troubled Garfield man who held his Yorkshire Terrier in his arms as he jumped to their deaths from the Palisades in Fort Lee Historic Park this afternoon claimed that his parents threatened to obtain a restraining order against him after accusing him of taking a knife to his mother.

Cross Yoler, 34, also posted a portion of a psychiatric evaluation on his Facebook page that called him a danger to others and said he’d threatened to kill himself and the dog.

He also wrote of chronic leg pain from Complex Regional Pain Syndrome (CRPS), posting images from a thermographic exam.

“here we go,” Yoler wrote in a recent post. “Dad took off for a week, here starts the [expletive] abuse. if i die this week it will be because of the yoler family ……good bye world…..”

  • UPDATE: Before jumping from the Palisades in Fort Lee Historic Park with his beloved Yorkshire Terrier in his arms, a troubled 34-year-old Garfield man took to Facebook, posting anguished thoughts and accusing others of “murdering” him. READ MORE….

FB post

After setting his car on fire today, Yoler threw his backpack off the cliffs, then followed with the Yorkie around 3 p.m., Palisades Interstate Parkway Police Chief Michael Coppola told CLIFFVIEW PILOT.

PIP police responding to near-simultaneous reports of a car fire and apparent bicycle crash on Henry Hudson Drive between Englewood Cliffs and Edgewater and found Yoler’s body, Coppola said tonight.

Fort Lee firefighters extinguished the car fire.

Three weeks ago, Yoler wrote on his Facebook page that he’d been accused of taking a knife to his mother when, in fact, he was fighting off his father, who he said “was choking me.”

“Tell me if you were being choked to death are going to stand there and do nothing or will you go in self defense mode,” posted Yoler, whose brother is a police officer.

“Family around the world this is for you. added Yoler, a Little Ferry native who was graduated from Ridgefield Park High School and attended Berkeley College in Clifton, according to his profile.

“Parents did this first,” he wrote, adding that his parents claimed he was mentally ill. “I am only protecting myself…..And my psychologist, he can go f— himself.”




















***** click here for the original article online.



People: Pets Factor winner Barney is a dog in a million

Pets Factor winner Barney is a dog in a million

By ANA HINE, 5 September 2014 9.37am.

There were cute faces and waggy tails galore — and now the Tele can announce the winner of Pets Factor 2014.

Samantha Glennie, 26, and her supportive dog Barney, have been chosen as our overall winning contestants.

Samantha, from Ardler, said: “It’s great news, he’s never won anything before. I’ve entered him into a few competitions, but nothing as big as this. It’s put me in a great mood and it’s really cheered up my day.”

After losing the use of her right arm last year when a surgical operation went wrong, the nurse found herself suffering from complex regional pain syndrome.

But looking after her Bichon Frise Barney, aged two, has prevented Samantha from getting too depressed.

She said: “I have a rare surgical complication, CRPS, which is to do with the nerves. It’s chronic pain, where even a gentle touch can be incredibly painful, and it’s constantly swollen.

“I’m on a lot of medication. Barney helps me cope by running around mad and making me laugh. He cheers me up when I feel down.”

Samantha will be splitting her prize, receiving a £150 cheque and £100 worth of pet vouchers.

This is so that she can use some of the money to pay for flea and worm treatment, both for Barney and for a new dog, Terry, her mother has just adopted from Romania.

Samantha said: “We went to Romania together in June and now mum’s adopted this little terrier with an apricot coloured coat. He’s due here in two weeks, so he’ll be getting treated when he arrives in the country.”

Along with his own worming, Barney will get a new bed and lots of pampering.

This is because, although she keeps him in good health, Samantha struggles to groom and wash him with only one arm. She said: “He needs to be professionally groomed, but it costs quite a lot of money. Getting his hair cut and washed too, because his hair goes a bit wild.

“I will now be able to get him groomed.”

When Samantha is out at work or having hospital treatment Barney is looked after by her grandmother, to ensure he isn’t left on his own.

“Somebody’s always with him,” said Samantha. “When I come home from work, and I only work part-time, I take him out for a walk and play with him. I also take him round to my mum’s, so he’s very well loved.

“I didn’t think he’d get as far as he has and I certainly didn’t think we would win, because there were so many entrants. He deserves it.”

PDSA veterinary surgeon Fiona McLeod was a member of our judging panel and explained why Samantha and Barney had been her top pick of our five finalists.

Fiona said: “Congratulations to Samantha and Barney on winning the Evening Telegraph’s Pet Factor competition.

“It’s great that Barney helped Samantha through her difficult year last year.

“Dogs like Barney bring happiness to people when times are tough and provide companionship.

“The PDSA is very grateful to the Evening Telegraph for choosing them to be their charity partner and we invite Tele readers to come along to our open day tomorrow to see what goes on behind the scenes at the PDSA Pet Hospital at Hawkhill, Dundee.”

The PDSA will receive a donation from Evening Telegraph readers as a result of the competition.




*** Click here for the original article online.






News: RSD sufferer is tasered by Spokane County Sheriff




A new lawsuit alleges Spokane County sheriff’s deputies used excessive force and ignored a man’s medical condition

Matt Kinerson alleges deputies used excessive force during a 2013 welfare check — despite warnings about his medical issues. - JACOB JONES
  • Matt Kinerson alleges deputies used excessive force during a 2013 welfare check — despite warnings about his medical issues.

On his knees in the parking lot of his Spokane Valley church, Matt Kinerson believes he is about to die. He watches a laser sight trained on his chest as several Spokane County sheriff’s deputies scream at him, weapons drawn. He had tried to warn them he has a medical condition, but now he cannot hold his weakened right arm above his head any longer.

It starts to fall toward his waist.

“I can’t stop it,” he explains. “I’m scared for my life.”

With his good left arm, he desperately reaches down and pulls up his shirt to try to show he does not have any weapon. As he pulls his shirt up over his face, a deputy fires a Taser, crumpling Kinerson to the ground.

“I thought I had been shot,” he says later. “I have a neurological disease, so I feel things differently.”

Kinerson, 44, suffers from Reflex Sympathetic Dystrophy, a disorder of the nervous system that causes chronic pain, hypersensitivity and mobility issues. In particular, Kinerson struggles to use his right arm, which hangs stiff along his stomach and shakes involuntarily.

His eyes grow wide and his voice turns sharp as he recalls the encounter from May 23, 2013. He explains deputies Tasered him twice, before wrenching his immobilized arm behind his back and berating him. He recently filed a federal lawsuit against the county and Tim Jones, the Spokane Valley deputy who fired the Taser, alleging excessive force and negligence.

County officials deny any wrongdoing, saying deputies believed Kinerson to be potentially suicidal and armed with a gun. A legal response filed last week says the deputy “used reasonable force to control the situation.”

Kinerson used to be a ski instructor. He says he enjoyed camping or shooting pool with friends. But throughout the past several years, RSD syndrome has increasingly limited his ability to function normally. Some days he struggles to get his shoes on. He lives with his parents, so they can help with daily tasks.

“It is very painful,” he says of RSD. “It messes with your nerves, messes with everything. … You just have to try to manage it.”

The day of the incident Kinerson had an argument with his family and drove off to cool down. After he left, his sister called 911 to report he might be distraught. She reportedly mentioned he sometimes carries a gun, for which he has a concealed pistol license.

Kinerson says a dispatcher soon called his cellphone. He gave her his location and assured her he was fine. When he saw sheriff’s patrol vehicles pull into the parking lot, he explained his medical limitations to the dispatcher so she could relay the information to the deputies. Kinerson’s father, George, says he also told 911 dispatchers about his son’s condition prior to the incident.

“I already know it makes police uneasy,” Kinerson says of his shaky right arm. “I can understand their position, [but] they didn’t try to communicate with me. … They didn’t do anything but scream at me the entire time.”

Despite the warnings, Kinerson was Tasered and wrestled into custody by force. He says he never offered any resistance, but deputies later reported he had yelled, “Shoot me!” Kinerson contends he was begging, “Don’t shoot me.”

George Kinerson says he and his wife have raised eight children to respect the church and the law, including one who served as a military police officer. But they say they now believe authorities misrepresented the facts of their son’s encounter, undermining the family’s longstanding trust in law enforcement.

Matt Kinerson never faced any charge. He later passed a psychological evaluation at the hospital. Even if he had been suffering mental distress, he says deputies made no effort to “talk him down” or reason with him. They defaulted to aggression, he says, treating an innocent citizen like a dangerous criminal.

“They didn’t act like police officers,” he says. “They acted like soldiers. … They’re not looking to protect and serve the populace. They’re looking to protect and serve themselves.”

His attorney Richard Wall says Spokane has seen a number of lawsuits in recent years based on overzealous police actions. Too many law enforcement encounters result in unnecessary force against a citizen.

Training should be improved, Kinerson says, but more than that or money, he would like to see the deputies fired. He says the community has become too complacent, giving law enforcement a free pass while citizens pay the price.

“I’m scared of them now,” he says. “I really am. That’s a bad thing. I shouldn’t be scared of the people I’m supposed to call when I’m in need.” 




*** Click here for the original article online.










News: Paralympics: Archery rule changes ‘against Games values’ (Danielle Brown)



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Paralympics: Archery rule changes ‘against Games values’

Athletes with ‘invisible’ disabilities will suffer as a result of Paralympic rule changes, says Britain’s London 2012 archery champion Danielle Brown.

The International Paralympic Committee ruled last year that Brown, who has complex regional pain syndrome in her feet, was ineligible for future Games.

“The Paralympic values of inclusion and equality are out of the window,” said the 26-year-old Brown.

She is not the only British archer affected by the new rules.

Earlier this month, London Paralympic team-mate Kenny Allen, 43, who has spina bifida, learned he was also banned.

Play media

Paralympian Brown wins able-bodied national title

Both the IPC and World Archery say they have “refined” their rules and are enforcing them more rigorously than in the past.

The IPC also says there is a category for those with “intellectual impairments”.

“It seems to be the invisible disabilities they are targeting,” said Brown, whose condition gives her chronic pain in her feet.

She uses a combination of crutches and a wheelchair to move around and competes while seated on a stool.

“These rules are going to limit the number of people that can compete at the Paralympics,” said Brown, who has given up hope of defending her title at Rio 2016 as she cannot appeal against the decision.

In 2010, she became the first English Paralympian to qualify for an able-bodied Commonwealth team, winning gold in Delhi.

However, her compound bow event is not part of the programme for this summer’s Games in Glasgow.

The two-time Paralympian is not interested in switching to the Olympic-approved recurve bow and admits her days in elite competition are over.

Danielle Brown on her disability

“I have chronic pain in both of my feet. I use crutches to get around and a wheelchair for longer distances. Some people have it and are better in a couple of months, but I’ve had it for 14 years now and there’s no sign of it getting any better.”

“I fought it as hard and as far as I could,” said Brown, whose case was supported by the British Athletes Commission.

“I’m devastated that I won’t be able to defend my title in Rio and never expected anything like this to happen.”

She has set up a company with her sister Helen, who is studying for a PhD in sports psychology, and plans to mentor young athletes and professionals.

“I spent seven years being the best in the world and was quite good at dealing with pressure,” said Brown.

“That’s something I’d like to help others with, as well as coping with exam pressure and stress management.”

Find out more about Danielle Brown’s story on Saturday Sportsday on BBC One at 12:45 BST (19 April).

* Click here for the original article online.






People: ‘You need to be a fighter’: living with CRPS (Paige Rodbard-Brown)

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‘You need to be a fighter’: living with CRPS

The response to the story of one girl’s battle with complex regional pain syndrome has been huge. Here, sufferers tell Channel 4 News how Paige helped shine a light on a much misunderstood condition.

Eleven-year-old Paige Rodbard-Brown has a condition so painful it is rated above having an amputation without an anaesthetic.

She has lost the use of one arm and it is only in the swimming pool that she can at least move her legs freely. It is too painful for her to stand, and her knees are rubbed red because she uses them to get around.

When Channel 4 News brought Paige’s story to the airwaves on Saturday, there was a huge response from sufferers who shared her frustration about the lack of awareness about the condition. It took doctors months to correctly diagnose her with complex regional pain syndrome – an agonising condition with dramatic symptoms, but that is triggered by a very small injury.

In Paige’s case, the condition was triggered by a minor injury she had while playing football. Many did not believe she could be in such pain – another common complaint from sufferers, who make up one in 4,000 people.

Experts agree that there is a lack of understanding about the symptoms and treatment. One said in December that diagnosis was far too slow, which was resulting in a delay to treatment. Gill Thurlow, consultant nurse at the Royal National Orthopaedic hospital (RNOH), which offers a specialist CRPS programme, said:

“They’ve often been through a journey by the time they get to us. It can be a difficult journey. Some of the symptoms are very particular. I would imagine most GPs don’t see one [case] in their career, let alone often. It is unusual. It’s fair to say it’s poorly recognised.”

There is treatment available. After a two-week therapy course, Paige went from having no independent movement to being able to run on a treadmill. But the pain remains, and the after effect of the activity is often more pain.

@Channel4News My Daughter of 20 has had CRPS since Oct 12 from a knee injury, it’s been he’ll for her, we had to go private to be diagnosed!

— Cheeky Latte (@cheekylatte) January 18, 2014

@Channel4News Thank You for this report. The pain we feel is REAl, you cannot see it but we can feel it. Go Paige!

— AFMCG (@afmcg_uk) January 18, 2014

‘It’s all in your head’

Paige’s mother Nicola Rodbard-Brown, who described the condition as “heart-breaking”, toldChannel 4 News that there has been an overwhelming response from viewers wanting to donate money to the charity, For Paige. It is raising money for a wheelchair for Paige, and equipment, such as crutches, for other sufferers.

“Within two minutes of the news finishing, we had a donation of £500,” Ms Rodbard-Brown toldChannel 4 News. “We’ve had another single donation of £100. People don’t realise just what this means – that’s a good six or seven pairs of crutches.”

And aside from the money, the family has been contacted by fellow sufferers who said that Paige telling her story, helped them to articulate the severity of the condition.

Chelsea, 20, a CRPS sufferer in Liverpool who stays in a residential hospice, showed the report to her nurses and carers. Previously they had told her the pain was “in her head”, and the report was like a lightbulb moment – they finally understood what she was going through.

“She wants to meet Paige, and thank her in person, as she’s shone a light on to CRPS,” said Ms Rodbard-Brown. “There’s a lack of understanding – a constant thing of ‘it’s all in your head’,” she added. “Everyone has good days and bad days. For Paige, a bad day is a wheelchair, day, and that’s even if she can get out of bed.”

“We want to bring more awareness of the situation that Paige is in, and the many people out there having to live with this condition.”

Here are some of the responses Channel 4 News has received:

Lindsay Langdon: “I have CRPS. I am an adult and it is incredibly tough to live with. I am just so thankful that more people are getting to hear about it. Pain is invisible. And that makes living with it even harder. You need to be a fighter.”

Elisa Bayliss “My daughter is 13, and has CRPS in her leg. We went through hell, but she has come out the other end – not better, but coping with good and bad days. But much better than she was.”

Rebecca Grant: “Thank you for raising awareness of this condition, and of other invisible, chronic pain conditions as a result. Paige’s story is very sad, but also inspirational, as she seems like such a wee fighter.”

Natasha Knight: “My 10-year old-son suffers from CRPS in both feet and ankles and uses a wheelchair full time. He has been suffering for the last year, he was admitted to Great Ormand Street Hospital for a two week rehab program last February and went into remission for four months but unfortunately relapsed in June and has been back in his chair ever since.”

Louise Hilborne: “
My sister is in constant agony and she shouldn’t be. She went into hospital for what should have been a simple operation to remove a small growth under her toe. A neuroma. Her life has now changed beyond comprehension. She can’t work, can’t walk far, can’t do much at all… Who would have thought that such a minor procedure would or could trigger this debilitating condition?”

* Click here for the original article online.